2. Pre-treatment

a. Review of program over the last year with particular focus on progress made since the last visit

b. Review objectives for the visit

c. Selection of patients in collaboration with the site team

             i. Site work up – decide on need for further testing

             ii. Scheduling – start up and end of visit cases

d. Modeling team approach – patient work up/treatment

e. Data collection – patient profile and preoperative checklist

3.  Treatment – Operative/Interventional Cath

a. Case review before and after treatment

b. Site team involvement/collaboration – observation of site team providing treatment

c. Use of available resources versus bringing in medical supplies

d. Data collection – treatment provided and outcome

Pediatric Cardiac Care Consortium

•         Founded 1979, now 47 centers;

•         Centralized data acquisition;

•         Developed uniform coding and classification system, plus severity adjustment methodology;

•         Analyzes data, maintaining patient and center anonymity;

•         Disseminates results, aggregate and center-specific, to participants;

•         Publishes scholarly papers and books detailing lesion-specific results and standards.

4.  Post-operative treatment

a. ICU Care – assured 24-hour consistency

b. Family interaction – information and access to patient

5.  Mission - End of week -   Wrap-up session involving both teams

a. Review of the week – how things went

b. Identify and discuss – additional needs and what can be done

6. Post-trip

       a. Debriefing of team members– Mission Debriefing Report

       b. Report back to site

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